Evie's condition has not changed much these last 12 hours. She remains on the bypass machine (its called ECMO) and the nurses and doctors spend most of the day adjusting the machine and her medications just to keep her "level". Additionally, she is now on a kind of "dialysis" just to give a little extra help to her kidneys. We are glad that she has not worsened, but it is discouraging that she is not improving as the longer she is on ECMO the greater she is at risk for brain bleed or infection.
So bad right now I just want to hear the doctors say, "She's getting better. She'll be off the machine soon. Soon she'll be awake. She's fixed. You can go home." As hard as I try to believe... it still feels like a fantasy. Its difficult to not want to give up, but Evie deserves better. If it weren't for our love for her, we wouldn't hurt this way. Because of our love for her, we have to keep hoping. Its all we can do...
We said goodbye to our parents this morning and sent them on their way. As difficult as it was for them to leave, we believe that it was necessary for them to go to be with their own communities and wait with us there in those places. Nicole and I slept at the hospital again last night. We don't anticipate leaving again tonight.
We had a few visitors today and their company was helpful. I am aware that some more are on their way tonight and tomorrow. We welcome them. We are just living here hour by hour, so we aren't very able to plan much, but if you do wish to come visit--please first give us a call to make sure we'll be around. Thank you to all.