Saturday was mostly a good day. Evie is much less fussy and she seems more comfortable. Last night she had her gorgeous eyes open for a long time, she also was making some funny faces. Nicole and I were energized by the chance to "play" with her a little bit as she is the most alert she has been since last Sunday. Her vitals have been impressive--no breathing problems, good heart rate, and good pulse-oxygen.
Friday night we had Evie baptized. Pastor Ryan was very kind to hurry down from Lake Geneva even after driving six hours home from Iowa. It was a wonderful and moving moment. We originally had considered baptizing Evie this spring, sometime in the Easter season. But with both sets of grandparents here, we felt there was no time like the present. We wanted everyone to know that we were not baptizing her out of fear for her destiny (that is sometimes a reason one would baptize a baby in the hospital), but as an act of confidence and faith--baptism is a sacrament for the living, it is the visible sign of God's grace. And God's grace is real in Evie's life. Last night was a celebration.
Saturday morning we met with the other surgeon who will be doing Evie's surgery on Monday. He said much of the same things that everyone else has said to us but he was also careful to remind us that this is a very serious surgery with inherent risk. It is challenging enough to move the great arteries back to their necessary spots, but the surgery will also be complicated by the need to fix some blockage in her aorta and to repair the hole they made between her lower ventricles during last Monday's cardiac catheter. Additionally, the surgery will be complicated by the fact that the aorta and pulmonary arteries are different sizes so they will need to be careful to be able to effectively attach them to the appropriate side of the heart. The surgeon did say that we had a 20% chance that they would have to use some additional synthetic materials to make the connection, and thus Evie would have to return for more surgeries as she grows. Obviously, we are hoping against this. The discussion was sobering, but as we have listened to the stories of other children who suffer through this and survive, we remain hopeful.
Surgery is scheduled for 7:30am CST tomorrow morning. It is estimated to last 6 hours. We continually ask for everyone's prayers that this surgery would be both safe and successful.