ECMO is a frightening machine, but we live with a tension in that though it is so dangerous it is also so necessary to keep Evie alive. After working hard all day making adjustments to the machines and medications, last night the care team finally stabilized Evie's blood pressure and brought down her heart rate to more safe levels. When we woke up this morning we hurried over to catch the end of rounds and got another good report: she stayed stable all night. We don't understand all the details of everything, but when our care team is happy with results--we're happy with results. They will continue to make some adjustments to medication and machine to help her even more. Later today they will do another echo-cardiogram to look at the heart and after evaluating it, our surgeon will decide how soon he wants to take the next step. Nicole and I have always tried to celebrate the little victories, so we'll put last night in the "win column". Thank you, Lord. We're making baby steps, but we're far from out of the woods yet.
For Nicole and I: many people have expressed their desire to help us in some way, to bring us something. We are moved by the generosity of our community. As I said earlier, we don't always know what we'll need (outside of a cure for heart defects). What we think we'll ask of people is to look at our "wish list" and if you want to help us out with any of these things, give us a call first so we can let you know for sure that we still need them. With such a kind and generous community surrounding us, we don't want to be inundated with more stuff than we need.
2 pair clean men's athletic socks
2 pair clean boxers (xl)
Someone to pick up my guitar from Geoff Benge's Guitar Shop at 3551 N Damen (I'll work out the details with whoever wants to do this).
1 Travel bottle of Shampoo
1 Travel bottle of Conditioner
2 pair women's athletic socks
As I said, we really recommend that you give us a call first if you want to bring us anything. We're slowly figuring things out, so we'll keep you posted of any additional needs. We are grateful for the deep care people have shown to us so far.
UPDATE: We have recieved all the things that we need for now. Thanks to you all. Evie remains stable and we will not know till later this evening anything more about her cardiograph results.