Evie is basically back to where she was this morning before the ECMO malfunction. She is stable at a flow of about 330, and we're told they plan to try her at 300 again tonight. Just now, before we left her room her blood pressure looked great for a long period of time so we are guessing that reducing her flow should go well. However, the true test will be tomorrow when they plan to "trial" her off of ECMO, meaning that they will turn the flow down as low as possible and watch her heart on an echo cardiogram. The goal is to hopefully take her off of ECMO soon and increase her medications to help her along. We would be thrilled if they were able to do this, because we want her off of ECMO ASAP. It is saving her life, but also threatening her life (this morning's incident is a perfect example).
Our emotions today have been very confusing. When we found out that her troubles this morning were due to a temporary malfunction of ECMO, we were both overwhelmingly relieved and angry that it ever happened in the first place. Then, when she quickly returned to stability, we should have felt good again, but it is hard to go from preparing for your child to die to accepting that they're stable. It was a difficult day, but we capped it off with some friends who brought us Thai food, and helped us talk and laugh a little bit.
For the morning, the best case scenario is that the doctors feel she is ready to be off of ECMO. Please pray for that miracle! Please also pray that, in any case, the doctors will have the wisdom to take the best course of action. Thanks to everyone for your support!