Since this morning's debacle Evie has remained stable. Her blood pressures have stayed good enough that they've turned down her ECMO flow to 380. That's not as low as where she was at yesterday, but it is a good sign she's tolerating it well.
Nicole and I are doing a little better too. The sights and sounds of your child crashing and the many long minutes we spent preparing to hear the worst had left us reeling, but with a few hours now to process and relax we're not freaking out as much. We are still very scared, but appreciative of signs that at least her heart has not been set back too much by the episode. As always there are numerous unknowns.
Subscribe to:
Post Comments (Atom)
12 comments:
DEAR FAMILY, MY PRAYERS GO OUT TO YOU AND YOPUR DAUGHTER. I HOPE SHE CAN SPENT HER FIRST CHRISTMAS AT HOME. I KNOW GAYLE FROM HOTSTREAK LONDON CHAT ROOM. SHE IS A NICE PERSON TO TALK TO . LOVE WILL ALWAYS BE IN MY HEART.
We continue with you. We continue with God... we continue trusting that God's response in the malfunction of the machine was instantaneous... both in the heart of Evie and in His rush to hold you both...and we continue to beseech Him on your behalf and to praise God for life extended..
let the joy of the Lord be your strength! He dwells in the midst of your praise. let your prayers be full of thanksgiving for all that He is doing. the difficulties and the intensity of the roller coaster will diminish as you continue to seek Him and His glory. i know it is hard, yet He sustains you and this child that you adore. He loves her even all the more!!!!! He loves you ALL SO MUCH!! continue to give your fears to Him, for He has not given you a spirit of fear, but of power, of love, and of a sound mind. please don't forget that His mercy endures forever. He wants you to hold on and grasp His grace. in Jesus' name!
I'm thanking God her heart is still handling things well.
Love and continued prayers....
Thank God for small things...We continue to keep Evie and you two in our prayers. We are with you in spirit!
Becky & Ryan
Just hello and love Nicole and Matt and a question? It was suggested to me today to include you and Evie on the general Covenant Prayer list that goes out from Sally Johnson at the president's office. I don't do this just on my own. I like to have the "yes" from the family.. I am happy to put you on,but need to know if that is your desire? Much, much love to you both and beautiful Evie. Jolene B-Carlson
Matt, Nicole, and Evie,
As a North Park student I have been praying with and for you but have only just gotten your blog url. Thank you for letting us wait before the Lord and before Evie with you. Jane Esterline
Matt and Nicole, even though I am two thousand miles away, I want you to know the three of you are in my thoughts and in my prayers. Stay strong and have faith. I love all three of you very much. I have spread the word around here and there are many people in many churches throughout the northwest praying for you. Many strangers have opened there hearts and prayers for you. We are all behind you and I am willing to do anything to help. Love you guys very much.
Uncle Mike Kennedy
Matt & Nicole I haven't written in awhile but there just has not been words that could express how my heart aches for you. I have continued to follow the blog and pray like crazy for you and Evie (I have come to know and love that little one in my heart as has my family) it was so disheartening to read the scare this morning and I am so glad to hear that she is back on the path to wellness. I love you guys and will continue to pray for your strength and faith as well as her recovery. Praying that all is well tomorrow and they can begin to take her off the machine. all my love in Christ Debi Bender
Matt and Nicole -
I fear/know words may not be sufficient comfort. I am one of many praying for you and your special girl Evie. We have not met as I am a sem-connect student in MN. One of my prayers for Evie is a prayer my dad had for me which is "Lord, put your hands around her heart and keep it pumping." There is hope. We serve and worship a God of hope.
- Joel
Dear Matt & Nicole ~
First, let me say I am living this experience with you as I read the blog. I am a friend of your mom's, Matt; I worked with her at Crestwood many years ago. My son Ryan (age 26) was diagnosed with TGA at ten days old. He has had three open heart surgeries (his final surgery was at 5 1/2 months old) and I am blessed to report he is 6'1, 250 pounds and doing very well. He has what's known as a "Mustard" procedure to correct his heart; it's basically a baffle system to redirect the blood to allow it to mix. He, too, had a septal defect which allowed him to remain alive outside of my womb. I have so much to share and would relish the opportunity to speak with you any time you would like. Please feel free to email me personally - you can ask me anything you like. It's my blessing to be able to share with you. Know that my husband and I hold you intimately close in our hearts, in our prayers, and in our minds daily. You will emerge from this experience a changed soul; and be forever grateful for it.
A soggy Seattle hug......
Joy & Pat Cavanaugh
joycavanaugh@hotmail.com
It broke my heart to read what happened this morning. I'm so sorry. You and Evie have been through so much. You're ever in my thoughts and prayers.
Love,
Brenda
Post a Comment